This guide is designed to help you better understand your diagnosis and empower you to confidently discuss your needs and care plan with your healthcare team.
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Elevate your expectations
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Elevate your expectations
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2025-09-18
NP-43458
Welcome to LivingWithC3G-ICMPGN.com
- Your helpful resource for living with a rare kidney disease such as C3 Glomerulopathy (C3G) or primary (idiopathic) Immune Complex-mediated Membranoproliferative Glomerulonephritis (IC-MPGN). Here, you’ll find practical information and insights to help you handle everyday life or support someone with living with one of these rare kidney conditions.
- LivingWithC3G-ICMPGN serves as a resource to foster resilience, empowerment and hope for those navigating the challenges of living with a rare kidney disease. Talk to your healthcare team about the most appropriate care plan for you or your loved one.
Finding your way through the unknown
Living with a rare kidney disease like C3G or IC-MPGN can feel like navigating a labyrinth, complex, confusing, and often lonely. The Rare Kidney Disease Labyrinth Challenge follows real patients, families, and experts as they face this maze together, searching for answers, hope, and connection.
Watch the film. Feel the journey. Find the way forward.
Living with C3G or primary IC-MPGN: CL3AR Expectations
CL3AR Expectations for Your Kidneys’ Health was created to help empower, support and inspire those impacted by C3G or primary IC-MPGN. Importantly, the campaign aims to drive awareness and knowledge about the health and lifestyle outcomes you can aim for with the right guidance and support from your healthcare team.
Unite4Rare
Unite4Rare is Sobi’s long-standing commitment to the patient and caregiver community, outlining all our responsibilities, what has been done so far and how we will measure progress into the future.
Download our patient guide
Explore more resources below
Understanding my kidney disease
Lacking information? Learn about C3G and primary IC-MPGN, including what they are, symptoms, diagnosis and progression.
Managing my kidney disease
Find out more about these conditions, including insights from people living with C3G and primary IC-MPGN.
Real life stories
A rare disease is just that – rare! Here, you can discover the experiences of others in the same situation.