Managing my kidney disease

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kid running to parent managing my disease

Navigating diagnosis with a rare kidney disease

New diagnosis? Learn how to navigate life after being diagnosed with the rare kidney diseases C3G or primary IC-MPGN.

Understanding rare kidney disease with Prof. Daniel Gale, Royal Free Hospital

Hear from Prof. Daniel Gale, Professor of Nephrology, Royal Free Hospital (UK) talking about rare kidney diseases and the challenges to diagnose.

How to Monitor Your Kidney Health

If you are living with C3 Glomerulopathy (C3G) or primary Immune Complex Mediated Membranoproliferative Glomerulonephritis (IC-MPGN), keeping track of your kidney health can help you feel more informed and in control.

Specialist Kidney Disease Centres for C3G and Primary IC-MPGN

Living with a rare kidney condition such as Complement 3 Glomerulopathy (C3G) or primary Immune Complex-Mediated Membranoproliferative Glomerulonephritis (IC-MPGN) may come with challenges.

Your Diagnosis and Care Journey - Step by Step

Receiving a diagnosis of Complement 3 Glomerulopathy (C3G) or primary Immune Complex-Mediated Membranoproliferative Glomerulonephritis (IC-MPGN) can be a lot to navigate.

Quality of Life and Looking to the Future

Living with a rare kidney condition such as Complement 3 Glomerulopathy (C3G) or primary Immune Complex-Mediated Membranoproliferative Glomerulonephritis (IC-MPGN) can bring challenges that go beyond medical appointments.

florio app teaser

florio NEPHREE: Track what matters. Empower your care.

Using florio® NEPHREE will support you in bringing structure to your daily life with C3G/IC-MPGN. Use it to track lab values, symptoms and medication in one place. Receive personalised reminders and short check cards so that you can always keep track of your taken medication and remember to note down any medical events.