Stories & resources

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real life stories

Documentary

The Rare Kidney Disease Labyrinth Challenge

understanding my rare kidney disease patient guide teaser

Guides to understand my rare kidney disease

Guides designed to help you better understand your diagnosis and empower you to confidently discuss your needs and care plan with your healthcare team.

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Understanding my rare kidney disease video

C3G and Primary IC-MPGN Stories of hope. From symptoms to diagnosis and beyond

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Yanick, a patient caregiver from Canada

C3G primary ic mpgn stories hope. Finding Answers: A family's journey to diagnosis.

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Enrique, a patient caregiver from Colombia

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Rare kidney disease video - Prof. Daniel Gale