Support tools
FAQs
Living with a rare kidney disease, such as C3 Glomerulopathy (C3G) or primary Immune Complex-Mediated Membranoproliferative Glomerulonephritis (IC-MPGN), may naturally leave you with lots of questions.
Guides to understand my rare kidney disease
Understanding my rare kidney disease video
Receiving a diagnosis of a rare kidney disease can raise many questions and uncertainties. In this video, Professor Daniel Gale shares expert insights into C3G and primary IC-MPGN, explaining the challenges of diagnosis and offering guidance to help patients and families better understand their condition and care journey.
Kidney biopsy why it matters in rare kidney disease
This factsheet explains what a kidney biopsy is, why it may be needed and what you can expect before, during and after the procedure. An interactive checklist is also included to help you prepare for their appointment and recovery.
Patient and caregiver resources page
Alongside the information available on this website, the links below may help you find further information, support groups and resources related to living with C3G and primary IC-MPGN.